Published in the Journal of General Internal Medicine, Dr. Caine looks at patient preferences on the sharing of electronic health records (EHR). In one study, they looked at 105 patients in a hospital-based primary care adult medicine practice in Indiana. They gave them the option to control access of EHR from physicians and other hospital staff. The results showed that 45 patients limited access, and 36 patients restricted access to all personal information. Dr. Caine’s standpoint on the topic is “if we fail to design systems that meet patients’ needs and desires about the extent to which their health data are shared, patients will reject them or even refuse care.” Several articles cite her study to look at the importance of patients having the ability to control what is released in their records, so they feel comfortable seeking care when they need it.
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